I am taking part in the 2nd Annual Miracle Race for Mylee Grace 2009, and have formed a team that I hope can raise funds and awareness about a very debilitating set of conditions called Chiari and Syringomyelia. Chiari and Syringomyelia are serious neurological disorders that affect the growth and development of the cerebellum where most of the body’s motor functions are housed. There are a range of affected funtions but walking, talking, and eating are just a few. My neighbors have a little girl named Mylee who is afflicted with this condition, and I would like to help them. I have some donations, but I also need people to participate.
Before you think about donating, please read from the blog that Mylee’s mother writes about raising Mylee and their other little one, and I want you to just place yourself in her shoes for a moment. Just take five minutes to read before you decide whether you can make a modest donation: http://myleegrace2006.blogspot.com/ Then take a moment to read about Mylee: http://www.myleegrace.com/Mylee_s_Journey.php Please remember that every little bit counts and is certainly appreciated.
To donate, or to register—remember, I need teammates in a show of support, and I can have up to 10 on my team or if we have too many, we can probably make another team—please follow this link: http://www.firstgiving.com/benbailey?ref=facebook&type=app The links that you’ll want to look for are ‘SPONSOR ME NOW’ & ‘JOIN THIS TEAM’. Again, every little bit helps.
Thanks so much for considering making a donation or participating in this event.
Filed under: About Us Tagged: | 2nd annual miracle race for mylee grace and her syrigo and chiari friends, chiari, fundraiser, help us find a cure, syringo
